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Functional, social and sexual impairments in psoriasis: a comparative study between patients with and without anogenital lesions

N. da Silva, M. Augustin, D. Wilsmann-Theis, A. Tsianakas, P. Staubach-Renz, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

Patient-reported Well-being in Value-based Care Using Tildrakizumab in a Real-world Setting: Protocol of a Multinational, Phase IV, 1-cohort Prospective Observational Study (the POSITIVE Study)

M. Augustin, R. Sommer, E. Daudén, P. Laws, E. de Jong, G. Fabbrocini, L. Naldi, A. Navarini, J. Lambert, Z. Reguiai, S. Gerdes, E. Massana, T. Obis, I. Kasujee, U. Mrowietz

Psoriasis is a chronic inflammatory skin disease that negatively impacts the quality of life of patients and their families. However, the most commonly used decision-making tools in psoriasis, Psoriasis Area and Severity Index (PASI), Physician Global Assessment (PGA) and Dermatology Life Quality Index (DLQI), do not fully capture the impact of psoriasis on patients' lives. In contrast, the well-established 5-item WHO Well-being Index (WHO-5) assesses the subjective psychological well-being of patients. Moreover, while drug innovations became available for psoriasis, data on the impact of these therapies on patients' lives and their closest environment (family, physicians) are limited. This study will assess the effect of tildrakizumab, an interleukin-23p19 inhibitor, on the overall well-being of patients with moderate-to-severe psoriasis. Moreover, the long-term benefit of tildrakizumab on physicians' satisfaction and partners' lives of patients with psoriasis will be evaluated.

PMID:
36792337
DOI:
https://doi.org/10.1136/bmjopen-2021-060536

Associations between disease burden and mental health outcomes in male and female patients with anogenital psoriasis: the mediating role of social avoidance and cognitive distraction coping

N. da Silva, M. Augustin, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

Effectiveness of a Structured Short Intervention Against Stigmatizing Attitudes Towards People with Skin Diseases in Body Care Professions

J. Traxler, M. Augustin, M. Grosser, C. Braren-von Stülpnagel, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

Development of an online-intervention to prevent self-stigmatization in people with visible chronic skin diseases

R. Sommer, CFZ. Stuhlmann, N. da Silva, J. Traxler

Poster presented at the EADV Congress 2023, Berlin, Germany

Development of Measurement Tools to Assess Cumulative Life Course Impairment in Patients with Chronic Skin Diseases

C.C. Braren-von Stülpnagel, M. Augustin, L. Westphal, R. Sommer

Patients with chronic skin diseases suffer from physical, psychological, emotional and social impairments. The overall burden has significant impact on patients' life, contributing to irreversible damage across many domains, known as cumulative life course impairment (CLCI). The aim of this project was to develop instruments which (a) measure persisting CLCI and (b) identify patients at risk for developing future CLCI.

PMID:
36807404
DOI:
https://doi.org/10.1111/jdv.18977

Disease burden and patient-defined treatment needs and benefits in patients with psoriasis with and without anogenital involvement

N. da Silva, M. Augustin, D. Wilsmann-Theis, A. Tsianakas, P. Staubach-Renz, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

Assessment of cumulative life course impairment in dermatology (PP16)

J. Traxler, R. Sommer, M. Augustin & C.C. Braren-von Stülpnagel

Poster presented at the conference of the European Society for Dermatology and Psychiatry (ESDaP), Rotterdam, the Netherlands

Disease burden and patient needs in women of childbearing age with psoriasis: a comparative study with same-age men and older women using data from the German PsoBest registries

R. Sommer & N. da Silva

Oral presentation presented at the 25th World Congress of Dermatology, Singapore

Developing an online intervention to reduce self-stigmatization in people with visible chronic skin diseases: a study protocol (PP15)

J. Traxler, C.F.Z. Stuhlmann, N. da Silva & R. Sommer

Poster presented at the conference of the European Society for Dermatology and Psychiatry (ESDaP), Rotterdam, the Netherlands

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