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2023

Patient-reported Well-being in Value-based Care Using Tildrakizumab in a Real-world Setting: Protocol of a Multinational, Phase IV, 1-cohort Prospective Observational Study (the POSITIVE Study)

M. Augustin, R. Sommer, E. Daudén, P. Laws, E. de Jong, G. Fabbrocini, L. Naldi, A. Navarini, J. Lambert, Z. Reguiai, S. Gerdes, E. Massana, T. Obis, I. Kasujee, U. Mrowietz

Psoriasis is a chronic inflammatory skin disease that negatively impacts the quality of life of patients and their families. However, the most commonly used decision-making tools in psoriasis, Psoriasis Area and Severity Index (PASI), Physician Global Assessment (PGA) and Dermatology Life Quality Index (DLQI), do not fully capture the impact of psoriasis on patients' lives. In contrast, the well-established 5-item WHO Well-being Index (WHO-5) assesses the subjective psychological well-being of patients. Moreover, while drug innovations became available for psoriasis, data on the impact of these therapies on patients' lives and their closest environment (family, physicians) are limited. This study will assess the effect of tildrakizumab, an interleukin-23p19 inhibitor, on the overall well-being of patients with moderate-to-severe psoriasis. Moreover, the long-term benefit of tildrakizumab on physicians' satisfaction and partners' lives of patients with psoriasis will be evaluated.

PMID:
36792337
DOI:
https://doi.org/10.1136/bmjopen-2021-060536

Entwicklung und Evaluation einer Online-Intervention gegen Selbststigmatisierung bei Menschen mit sichtbaren chronischen Hauterkrankungen – Protokoll einer randomisiert-kontrollierten Studie

J. Traxler, C.F.Z. Stuhlmann, N. da Silva & R. Sommer

Oral presentation presented at the 22nd DKVF Conference, Berlin, Germany

Everybody Copes: An Interprofessional Workshop on Stress, Coping, and Helping Primary Care Patients Manage Medical Stressors

CFZ. Stuhlmann, H. Spellman, DJ. Coletti

The value of psychological principles has become apparent in medical settings, especially with the rise of patient-centered care. We aimed to provide a curriculum informing medical providers about the theoretical basis and clinical utility of the social-cognitive model of stress and coping.

PMID:
36798526
DOI:
https://doi.org/10.15766/mep_2374-8265.11300

Social and sexual well-being among young adults coping with stigma of visible chronic skin disease

C.F.Z. Stuhlmann

Oral presentation presented at the European Health Psychology Society Conference (EHPS), Bremen, Germany

Psychosocial health and quality of life in ICSI and naturally conceived adolescents: a cross-sectional comparison

N. Eisemann, M. Schnoor, E. Rakuska, C.C. Braren-von Stülpnagel, A. Katalinic, M. Ludwig, B. Sonntag, A.K. Ludwig & S.A. Elsner

Psychosocial health (PH) and quality of life (QoL) are important health outcomes. We compared PH and QoL of adolescents conceived with intrazytoplasmatic sperm injection (ICSI) and of naturally conceived controls. The impact of disclosure of ICSI-conception on QoL and PH was quantified.

PMID:
36928650
DOI:
https://doi.org/10.1007/s11136-023-03382-5

Identifying Predictors and Correlates of Skin Disease Self-Stigma for Online RCT Intervention: A systematic review

CFZ. Stuhlmann, J. Traxler, V. Paucke, R. Sommer

Poster presented at the 52. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany.

Associations between disease burden and mental health outcomes in male and female patients with anogenital psoriasis: the mediating role of social avoidance and cognitive distraction coping

N. da Silva, M. Augustin, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

Functional, social and sexual impairments in psoriasis: a comparative study between patients with and without anogenital lesions

N. da Silva, M. Augustin, D. Wilsmann-Theis, A. Tsianakas, P. Staubach-Renz, R. Sommer

Poster presented at the EADV Congress 2023, Berlin, Germany.

A Comparative Analysis of the Predictors, Extent and Impacts of Self-stigma in Patients with Psoriasis and Atopic Dermatitis

S. Schlachter, R. Sommer, M. Augustin, A. Tsianakas, L. Westphal

The impact of dermatological diseases goes beyond symptoms and often includes psychosocial burden. Self-stigmatization plays a key role in this relationship and was compared in patients with psoriasis and atopic dermatitis to evaluate the validity of cross-disease stigmatization models. In total, 101 patients per indication were included in this cross-sectional study. Besides sociodemographic and clinical data, patient-reported outcome measures relating to self-stigmatization, depression, anxiety, and quality of life were compared across groups. Sociodemographic and clinical factors were tested for their moderating effects between self-stigmatization and quality of life.

PMID:
37014270
DOI:
https://doi.org/10.2340/actadv.v103.3962

Interventions Targeting Social and Self-stigmatization Among People with Visible Chronic Skin Disease – Results from Randomized Controlled Trials

R. Sommer, C.F.Z. Stuhlmann, N. da Silva & J. Traxler

Oral presentation presented at the conference of the European Society for Dermatology and Psychiatry (ESDaP), Rotterdam, the Netherlands

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