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Assessing HRQoL in chronic wounds across countries: The cross-cultural validity of the revised Wound-QoL questionnaire

C. Von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM. Fagerdahl, A. Gamus, E. Conde Montero, TM. Klein, C. Blome, R. Sommer (2020, October).

Annual Conference of the International Society for Quality of Life Research 2020 (Oral presentation): IDB202.6

Stigmatization caused by hair loss – a systematic literature review

M. C. Schielein1, L. Tizek1, S. Ziehfreund1, R. Sommer2, T. Biedermann1, A. Zink1

1Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Munich, Munich, Germany

2Institute for Health Services Re- search in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1368

 

Hair loss is a symptom that can cause stigmatization and severe impairment of quality of life. The aim of this systematic review was to evaluate the literature on stigmatization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

PMID:
Epub 2020 Oct 4. 33015951
DOI:
10.1111/ddg.14234

Significance and extent of stigmatization against persons with visible skin conditions in the public

R. Sommer, M. Augustin (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): OP05.05

Disease burden and patient needs in emerging adults and adults with psoriasis: Addressing developmental specificities for person-centered healthcare.

N. da Silva, M. Augustin, A. Langenbruch, A. Dankworth, R. Sommer (2019, October).

Oral communication presented at the 18. Deutscher Kongress für Versorgungsforschung (DKVF): Gemeinsam Verantwortung übernehmen für ein lernendes Gesundheitssystem, Berlin, Germany.

DOI:
10.13140/RG.2.2.12807.14247

Quality of life profile in children/adolescents with chronic conditions: A meta-analysis with the KIDSCREEN questionnaires

N. da Silva, M. Pereira, C. Otto, U. Ravens-Sieberer, MC. Canavarro, M. Bullinger (2019, September). 

Oral communication presented at the 14. Kongress der Fachgruppe Gesundheitspsychologie: Gesundheitspsychologie - individualisiert, bevölkerungsbezogen und versorgungsrelevant?, Greifswald, Germany.

Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

J. Bloemeke1, N. Silva2,3, M. Bullinger2, S. Witt2, H-G. Dörr4, J. Quitmann2

1Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf in Hamburg, Hamburg, Germany. j.bloemeke@uke.de

2Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf in Hamburg, Hamburg, Germany

3Center for Research in Neuropsychology and Cognitive and Behavioral Intervention (CINEICC), Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal

4Clinic for Children and Adolescents, University Hospital Erlangen-Nurnberg, Erlangen, Germany

Health Qual Life Out. 2019;17:49

 

The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluates the psychometric properties of the QoLISSY questionnaire within a German prospective trial of short statured children treated with human growth hormone (hGH).

PMID:
30885197
DOI:
10.1186/s12955-019-1118-9

Skin Disease Implications for Self-Image Development in Adolescence and Young Adulthood.

CF. Zimmermann, TA. Revenson (June 2019).

Oral Presentation accepted for the European Society for Dermatology and Psychiatry Congress, Giessen, Germany.

Erste Daten und Strategien zur Entstigmatisierung

R. Sommer (2019, May)

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019 (invited talk): MS08/03

„People-Centered Health Care“ von CLCI bis Entstigmatisierung: Neue Versorgungskonzepte bei Hauterkrankungen

R. Sommer (2019, May)

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019 (invited talk): AKS17/01

Leitliniengerechte Behandlung/Adhärenz/Präferenz

R. Sommer (2019, May)

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019 (invited talk): MS26/02

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