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Xerosis cutis und Stigmatisierung: Patientensicht bei Hauterkrankungen und Erkenntnisse über die Auswirkungen einer Hautpflege

C. von Stülpnagel, N. da Silva, L. Schmidt, G. Nippel, M. Augustin, Sommer (2021, April).

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Effectiveness of a structured short intervention against stigmatisation in chronic visible skin diseases: Results of a controlled trial in future educators

N-A. Weinberger MSc1, S. Mrowietz2, C. Luck‐Sikorski Prof, Dr1, R. von Spreckelsen Dr3, S. M. John Prof, Dr4, R.Sommer MPH, Dr5, M. Augustin Prof, Dr5, U.Mrowietz Prof, Dr3

1Research Group: Chronic Diseases and Psychological Health (COPE), University of Applied Health Sciences SRH Gera, Gera, Germany

2Vocational College for Social Pedagogy, RBZ Koenigsweg, Kiel, Germany

3Psoriasis‐Center at the Department of Dermatology, University Medical Center Schleswig‐Holstein, Campus Kiel, Kiel, Germany

4Department of Dermatology, Environmental Medicine, Health Theory, Institute for Interdisciplinary Dermatological Prevention and Rehabilitation (iDerm), University of Osnabrueck, Osnabrueck, Germany

5Institute for Health Services Research in Dermatology and Nursing (IVDP), German Center for Health Services Research in Dermatology (CVderm), University Medical Center Hamburg‐Eppendorf (UKE), Hamburg, Germany

Health Expect. 2021 Oct;24(5):1790-1800

 

Chronic visible skin diseases are highly prevalent, and patients affected frequently report feeling stigmatised. Interventions to reduce stigmatisation are rare.

Objectives: This study aimed to evaluate the effectiveness of a structured short intervention in reducing stigmatising attitudes towards psoriasis in future educators.

Bestimmung der transnationalen gesundheitsbezogenen Lebensqualität: Die kulturübergreifende Validität des überarbeiteten Wound-QoL-Fragebogens

C. von Stülpnagel, N. da Silva, M. Augustin, C. van Montfrans, C. Fife, AM. Fagerdahl, A. Gamus, TM. Klein, C. Bome, R. Sommer (2021, April). 

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Significance of chronic pruritus for intrapersonal burden and interpersonal experiences of stigmatization and sexuality in patients with psoriasis

R. Sommer1, M. Augustin1, C. Hilbring1, S. Ständer2, M. Hubo3, H.J. Hutt3, C.C. von Stülpnagel1, N. da Silva1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Kompetenzzentrum Chronischer Pruritus, Universita ̈tsklinikum Mu ̈nster (UKM), Mu ̈nster, Germany

3LEO Pharma GmbH, Neu-Isenburg, Germany

J Eur Acad Dermatol Venereol. 2021 Jul;35(7):1553-1561

 

60–90% of patients with psoriasis suffer from pruritus and 65% report itching as one of the most burden- some symptoms, raising significant quality of life (QoL) impairments. However, pruritus is not only an intrapersonal symptom but also a psychosocial interactive phenomenon and little is known about the effects of itching on interpersonal experiences.

Objectives: This study aimed to compare the disease burden and patient needs between patients with none/mild vs. moderate/severe pruritus, and to examine the impact of disease parameters and intrapersonal burden on perceived stigmatization and sexual relationships.

Assessment of stigma related to visible skin diseases: a systematic review and evaluation of patient-reported outcome measures

C. Luck-Sikorski1, P. Roßmann1, J. Topp2, M. Augustin2, R. Sommer2, N.A. Weinberger1

1Research Group: Chronic Diseases and Psychological health (COPE), University of Applied Health Sciences SRH Gera, Gera, Germany

2Institute for Health Services Research in Dermatology and Nursing (IVDP), German Centre for Health Services Research in Dermatology (CVderm), University Medical Centre Hamburg-Eppendorf (UKE), Hamburg, Germany

J Eur Acad Dermatol Venereol. 2021 Nov 24

 

Misconceptions about visible skin diseases are widespread, and patients often face discrimination and stigmatization due to their condition. The associated negative health and psychosocial consequences of stigmatization in skin diseases have prompted an increase in research activity in recent times, resulting in a wide variety of assessment measures. This study aimed at aggregating and evaluating evidence of psychometric properties and methodological quality of published measures to assess stigma in visible skin diseases.

Secukinumab effects on disease burden, patient needs and benefits, and treatment satisfaction in patients with plaque psoriasis across European regions: patient perspective data from the PROSE study

N. da Silva1, R. Sommer1, C.-E. Ortmann2, P. Jagiello2, T. Bachhuber2, M. Augustin1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

2Novartis Pharma AG, Basel, Switzerland

J Eur Acad Dermatol Venereol. 2021 Nov;35(11):2241-2249

 

Cross-cultural differences in healthcare policies and patient–physician communication may influence the quality of care and patients’ perceived benefits and satisfaction with psoriasis treatment.

Mapping risk factors for cumulative life course impairment in patients with chronic skin diseases - a systematic review

C.C. von Stülpnagel, M. Augustin, L. Düpmann, N. da Silva , R. Sommer

German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

 J Eur Acad Dermatol Venereol. 2021 Nov;35(11):2166-2184

 

Patients with chronic skin diseases suffer from physical and psychosocial impairments which can lead to a cumulative life-long burden. Therefore, the concept of cumulative life course impairment (CLCI) was introduced, referring to the non- reversible damage due to the persistent life-long burden. This systematic review (PROSPERO registry number: CRD42020179141) aimed at mapping the risk factors and the associated burden over time in patients with psoriasis, ato- pic dermatitis (AD) and hidradenitis suppurativa (HS).

Patient-reported outcomes measures – measuring wellbeing not only burden of disease

R. Sommer

6th World Psoriasis & Psoriatic Arthritis Conference, 2021; keynote lecture.

Was wünschen sich Patienten mit sichtbaren Hauterkrankungen und welche Probleme beschäftigen sie im Alltag?

R. Sommer

Jahrestagung des Arbeitskreises Psychosomatische Dermatologie; 2021.

Determining the Minimal Important Difference for the Wound-QoL Questionnaire

J. Topp1, C. Blome1, M. Augustin1, N. Mohr1, E. Sebastian Debus2, H. Diener2, R. Sommer1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), German Center for Health Services Research in Dermatology (CVderm), University Medical Center Hamburg- Eppendorf (UKE), Hamburg, Germany

2Department of Vascular Medicine, University Medical Center Hamburg- Eppendorf (UKE), Hamburg, Germany

Patient Prefer Adherence. 2021 Jul 14;15:1571-1578

 

The questionnaire for the quality of life with chronic wounds (Wound-QoL) is a valid and reliable instrument to determine the disease-specific health-related QoL of patients with chronic wounds. For the interpretation of HRQoL scores, it is additionally important to know which differences in scores are considered meaningful. The minimal important difference (MID) is defined as a change in HRQoL that a patient would consider meaningful, such that the patient would judge a treatment to be beneficial and worthy of repeating.