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Topologie der Psoriasis. Eine Prävalenzanalyse aus Real-World-Daten im Längs- und Querschnitt

C. Sorbe, R. Sommer, N. Kirsten, A. Danckworth, L.  Kühl, M. Augustin

Haut 2021; 32 (5): 212-214

Interpersonal experiences of stigmatization and sexual impairments, quality of life and depression in patients with psoriasis: The mediating role of social avoidance coping

N. da Silva, M. Augustin, D. Wilsmann-Theis, P. Staubach-Renz, C. von Stülpnagel (2021, September-October).

ePoster presented at 30th European Academy of Dermatology and Venereology (EADV) Congress [Virtual].

Assessing the quality of life of people with chronic wounds by using the cross-culturally valid and revised Wound-QoL questionnaire

C.C. von Stülpnagel1, N. da Silva1, M. Augustin1, C. van Montfrans2, C. Fife3,4, A-M. Fagerdahl5, A. Gamus6, T. M. Klein1, C. Blome1, R. Sommer1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg- Eppendorf (UKE), Hamburg, Germany

2Department of Dermatology, Erasmus Medical Center, Rotterdam, The Netherlands

3Baylor College of Medicine, Houston, Texas 4The U.S. Wound Registry, Woodlands, Texas

5Department of Clinical Science and Education, Wound Centre, Södersjukhuset, Karolinska Institutet, Stockholm, Sweden

6Maccabi Health Services, Sackler Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel

Wound Repair Regen. 2021 May;29(3):452-459

 

The Wound-QoL is an often used reliable and valid measure, originally developed in Germany. It has been sequentially translated and validated for other languages/coun- tries, for the measurement of health-related quality of life (HRQoL) in patients with chronic wounds. However, a study from the United States postulated its benefits from further adaptations. Furthermore, some patients struggled to provide an answer for some of the items. We aimed to test the cross-cultural structure and psychometric per- formance of the questionnaire to suggest necessary revisions.

PMID:
Epub 2021 Feb 17. 33595907
DOI:
10.1111/wrr.12901

Disease burden and patient needs/benefits in patients with psoriasis with and without anogenital involvement: Preliminary results from the PsoGen study

N. da Silva, M. Augustin, D. Wilsmann-Theis, P. Staubach-Renz, C. von Stülpnagel (2021, September-October).

ePoster presented at 30th European Academy of Dermatology and Venereology (EADV) Congress [Virtual]

Was wünschen sich Patienten mit sichtbaren Hauterkrankungen und welche Probleme beschäftigen sie im Alltag?

R. Sommer

Jahrestagung des Arbeitskreises Psychosomatische Dermatologie; 2021.

Significance of chronic pruritus for intrapersonal burden and interpersonal experiences of stigmatization and sexuality in patients with psoriasis

R. Sommer1, M. Augustin1, C. Hilbring1, S. Ständer2, M. Hubo3, H.J. Hutt3, C.C. von Stülpnagel1, N. da Silva1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Kompetenzzentrum Chronischer Pruritus, Universita ̈tsklinikum Mu ̈nster (UKM), Mu ̈nster, Germany

3LEO Pharma GmbH, Neu-Isenburg, Germany

J Eur Acad Dermatol Venereol. 2021 Jul;35(7):1553-1561

 

60–90% of patients with psoriasis suffer from pruritus and 65% report itching as one of the most burden- some symptoms, raising significant quality of life (QoL) impairments. However, pruritus is not only an intrapersonal symptom but also a psychosocial interactive phenomenon and little is known about the effects of itching on interpersonal experiences.

Objectives: This study aimed to compare the disease burden and patient needs between patients with none/mild vs. moderate/severe pruritus, and to examine the impact of disease parameters and intrapersonal burden on perceived stigmatization and sexual relationships.

PMID:
Epub 2021 Mar 29. 33630357
DOI:
10.1111/jdv.17188

Perception and determinants of stigmatization of people with psoriasis in the German population

R. Sommer1, J. Topp1, U. Mrowietz2, N. Zander1, M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center at the Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2846-2855

 

Perception of psoriasis in the general population is characterized by knowledge deficits and prejudice against those affected. The extent and possible predictors of stigmatizing attitudes remain unclear.

PMID:
32277524
DOI:
10.1111/jdv.16436

Characterizing treatment-related patient needs in atopic eczema: insights for personalized goal orientation

M Augustin1, A Langenbruch1, C Blome1, M Gutknecht1, T Werfel2, S Ständer3, S Steinke3, N Kirsten1, N Silva1, R Sommer1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Division of Immunodermatology and Allergy Research, Department of Dermatology and Allergy, Hannover Medical School, Hanover, Germany

3Center for Chronic Pruritus, Department of Dermatology, University Hospital Muenster, Muenster, Germany

J Eur Acad Dermatol Venereol. 2020 Jan;34(1):142-152

 

Atopic eczema (AE) is a common and burdensome chronic skin disease. Clinical guidelines suggest an evidence-based, personalized and stepwise treatment approach. Only few studies have so far focused on the specific patient needs in treatment.

PMID:
31465587
DOI:
10.1111/jdv.15919

Sex-related impairment and patient needs/ benefits in anogenital psoriasis: Difficult-to- communicate topics and their impact on patient-centred care

N. da Silva1, M. Augustin1, A. Langenbruch1, U. Mrowietz2, K. Reich1, D. Thaçi3, W. Boehncke4, N. Kirsten1, A. Danckworth1, R. Sommer1

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

3Institute and Comprehensive Centre Inflammation Medicine,University of Lübeck,Lübeck, Germany

4Division of Dermatology and Venereology, Geneva University Hospitals, Geneva, Switzerland

PLoS One. 2020 Jul 1;15(7):e0235091

 

Genital psoriasis affects 2-5% of psoriasis patients; generalised plaque or intertriginous psoriasis also affects the genital area in 29-40% of cases. Anogenital psoriasis has been associated with significant quality of life impairments, but little is known about specific patient needs/treatment goals. This study aimed to examine the overall and sex-related disease burden, patient needs and treatment benefits in patients with anogenital psoriasis, compared to patients with psoriasis not affecting the anal/genital areas.

PMID:
32609733
DOI:
10.1371/journal.pone.0235091

Disease burden and patient needs and benefits in anogenital psoriasis: developmental specificities for person-centred healthcare of emerging adults and adults

N. da Silva1, C.C. von Stülpnagel1, A. Langenbruch1, A. Danckworth1, M. Augustin1, R. Sommer1

German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

J Eur Acad Dermatol Venereol. 2020 May;34(5):1010-1018

 

Establishing romantic relationships involving cohabitation and/or sexual intercourse is an overriding task for many people during emerging adulthood, i.e. from their late teens through the twenties. The diagnosis of anogenital psoriasis may hinder social/intimate relationships, resulting in higher disease burden in this age group.

PMID:
31715033
DOI:
10.1111/jdv.16076
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