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Is Social Stigma Responsible for the Poor Psychological Adjustment of People with Visible Skin Disease? A Meta-Analysis

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson (2022, April)

Poster accepted for the Society of Behavioral Medicine, Baltimore, MD.

A Systematic Review and Meta-analysis of Factors Associated with Stigma of Dermatologic Disease Psychodermatology and quality of life

CFZ. Stuhlmann, S. Lysakova, C. Jordan, T. Revenson, R. Sommer, L. Wilhelm (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Disease burden and patient needs in women of childbearing age with psoriasis: retrospective analysis from the German PsoBest registries Psoriasis

N. da Silva, L. Westphal, M. Augustin, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

How do dermatologists' personal models inform a patient-centred approach to management: a qualitative study using the example of prescribing a new treatment (Apremilast)

R. M. Hewitt1, C. Bundy1, A-L. Newi2, E. Chachos3, R.Sommer2, C.E. Kleyn4, Matthias Augustin2, C.E.M. Griffiths4,  C. Blome2

1School of Healthcare Sciences, College of Biomedical & Lifesciences, Cardiff University, Cardiff, UK

2Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany

3Turner Institute for Brain and Mental Health, Monash University, Melbourne, Australia

4University of Manchester, The Dermatology Centre, Barnes Building, Salford Royal NHS 

Br J Dermatol. 2022 Jan 22. doi: 10.1111/bjd.21029

 

The quality of dermatology consultations is partly determined by how clinicians approach patient care. The term ‘Personal Models’ describes the explanatory frameworks of thoughts, feelings and experiences that drive behaviour. One study found that clinicians’ personal models, specifically their beliefs about autonomy and patient self-management, influenced the degree to which clinicians engage patients in shared decision-making during consultations. Further research is needed to further explore how clinicians’ personal models inform and affect the quality of patient care.

A Structured Intervention for Medical Students Significantly Improves Awareness of Stigmatisation in Visible Chronic Skin Diseases: A Randomised Controlled Trial

R. Sommer1, N-A. Weinberger2, R. Von Spreckelsen3, U. Mrowietz3,  M. C. Schielein4, C. Luck-Sikorski2 , M. Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg,

2Research group: Chronic diseases and psychological health (COPE), SRH University of Applied Health Sciences, Gera

3Psoriasis-Center Kiel, Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel

4Department of Dermatology and Allergology, Faculty of Medicine, Technical University of Mun

Acta Derm Venereol. 2022 Jan 31;102:adv00641.

 

People with visible skin diseases often experience stigmatisation. The aim of this study was to develop and evaluate an intervention for medical students to counter the stigmatisation of people with skin diseases. A 3-h intervention was developed, including self-experience, education and a patient encounter. Effectiveness regarding outcomes was assessed at 3 time points: before and immediately after the intervention, and at 3-month follow-up. Data from 127 participants were analysed. Regarding all outcomes, significant effects were observed in the intervention group, for
“social distance”, “agreement with negative stereotypes”, “agreement with disease-related misconceptions” and “intended behaviour”. These results should encourage medical faculties to invest in such courses to prevent stigmatisation.

Dermatological care of elderly people with psoriasis before and after entering a nursing home: A qualitative analysis from the perspective of medical providers

 C.C. von Stülpnagel1, J. Petersen1, M. Augustin1, R. Sommer2

1Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland.

2Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Martinistr. 52, 20246, Hamburg, Deutschland. r.sommer@uke.de.

Hautarzt. 2022 Apr 28.

 

Demografische Veränderungen bewirken einen steilen Anstieg der Anzahl der über 65-Jährigen. Damit verbunden ist die Zunahme der Anzahl pflegebedürftiger, multimorbid Erkrankter. National wie auch international gibt es keine Informationen insbesondere zur Versorgung von Psoriasiserkrankten im Setting Pflegeheim und zur Frage, wie diese durch den Eintritt in ein Pflegeheim beeinflusst wird.

Development of new measures to capture Cumulative Life Course Imairments (CLCI) in patients with chronic skin diseases

C. von Stülpnagel, M. Augustin, L. Westphal, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Patients' and physicians' perspectives of shared decision making for psoriasis systemic treatment: associations with sources of information and health literacy

N. da Silva, M. Augustin, S. Pohl, J. Traxler, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Measuring patient-relevant benefits in the treatment of psoriasis with the Patient Benefit Index: development and preliminary validation of a 10-item short form

C. Blome1,  C.C. von Stülpnagel1, M. Augustin1, U. Mrowietz2, K. Reich1, H. Muehlan3, N. Kirsten1, A.K. Langenbruch1, C. Sorbe1, T.M. Klein

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2 Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Campus Kiel, Germany

3 Department Health & Prevention, Institute of Psychology, University of Greifswald, Germany

Patient-relevant benefits from treatment of inflammatory skin diseases can be measured with the validated 25-item questionnaire Patient Benefit Index Standard version (PBI-S; www.patient-benefit-index.com). It consists of two parts: the Patient Needs Questionnaire, in which patients rate the importance of 25 different treatment goals, and the Patient Benefit Questionnaire, in which patients evaluate the achievement of these goals by therapy. From all items, an importance-weighted total benefit score is determined. However, shorter instruments are often preferable both in practice and in clinical trials. We therefore developed and tested a 10-item short form of the PBI-S named the ‘PBI-S-10’, which should maintain both content validity and good psychometric properties. The short form should allow for the calculation of a total score that indicates overall patient-relevant benefit and demonstrate high agreement with the long form.

Stigma in visible skin diseases - a literature review and development of a conceptual model

N. Germain1, M. Augustin2, C. Francois1, K. Legau3, N. Bogoeva4, M. Desroches1, M. Toumi5, R. Sommer2

1HEOR, Creativ-Ceutical, Paris, France

2Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

3LEO Pharma, Kopenhagen, Denmark

4HEOR, Creativ-Ceutical, Sofia, Bulgaria

5Public Health Department, Aix-Marseille University, Marseilles, France

J Eur Acad Dermatol Venereol. 2021 Jul;35(7):1493-1504

 

The burden of visible skin diseases (VSDs) includes not only physical symptoms but also psychosocial consequences such as depression, anxiety, impaired quality of life and low self-esteem. Stigmatization was shown to play a major role in people with skin diseases. The aim of the study was to review the evidence for the components, drivers and impacts of (self-)stigma, and to organize the data into a series of conceptual models.