Publikationen

29th European Academy of Dermatology and Venereology Congress 2020 (Oral presentation): ID680

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID285

J Child Fam Stud 2020; 29: 3302-3316

In pediatric settings, a valid and reliable assessment of negative and positive dimensions of caregiving can inform intervention processes and improve parent–child adaptation outcomes. While caregiving is a normative component of parenting, the experience can be quantitatively and/or qualitatively different for parents of children with a chronic health condition. The aim of this study was to systematically examine the psychometric properties of the “Revised Burden Measure” in a sample of parents of children with and without chronic health conditions. The “Revised Burden Measure” and self-reported measures of quality of life and mental health were administered to a sample of parents who had children with (n=277) or without (n=117) chronic health conditions.

UKE-Studie deckt psychosoziale Belastungen Betroffener auf. DERM 2020 (invited talk)

J Eur Acad Dermatol Venereol. 2020 Jan;34(1):142-152

Atopic eczema (AE) is a common and burdensome chronic skin disease. Clinical guidelines suggest an evidence-based, personalized and stepwise treatment approach. Only few studies have so far focused on the specific patient needs in treatment.

Cent Eur J Paediatr, 16(2), 182-199

Objective – First, to compare prosocial behaviors and psychological maladjustment between children, preadolescents and adoles- cents with and without chronic health conditions; and second, to test the direct and indirect effects, via psychological problems, of prosocial behavior on quality of life (QoL). In addition, the invariance of this model was examined across different age groups and health conditions.

J Dtsch Dermatol Ges. 2020 Dec;18(12):1357-1369

Haarausfall ist ein Symptom, das Stigmatisierung und starke Einbußen in der Lebens- qualität mit sich bringen kann. Ziel dieser systematischen Übersichtsarbeit war es, die Literatur zum Thema Stigmatisierung bei Haarausfall auszuwerten. Mit vordefinier- ten MeSH-Begriffen und Schlagwörtern wurde eine systematische Suche in den Da- tenbanken MEDLINE (PubMed), EMBASE, PsycINFO und PsycNET durchgeführt.

Hair loss is a symptom that can cause stigmatization and severe impairment of qua- lity of life. The aim of this systematic review was to evaluate the literature on stig- matization of hair loss. Using predefined MeSH terms and keywords, a systematic search was performed in the databases MEDLINE (PubMed), EMBASE, PsycINFO and PsycNET.

J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2846-2855

Perception of psoriasis in the general population is characterized by knowledge deficits and prejudice against those affected. The extent and possible predictors of stigmatizing attitudes remain unclear.

Wound Repair Regen. 2020 Sep;28(5):609-616

People with chronic wounds perceive an impaired health-related quality of life (HRQoL). For the assessment of HRQoL, valid instruments are needed. Therefore, the Wound-QoL questionnaire was originally developed and psychometrically validated for use in Ger- many. As the Wound-QoL is to be used in numerous countries, international versions are required. Therefore, this study aimed to psychometrically validate the U.S. English Wound-QoL version. Upon translation into U.S. English, psychometric testing was per- formed based on cross-sectional data deriving from the U.S. Wound Registry.

19. Deutscher Kongress für Versorgungsforschung 2020 (Oral presentation): ID142