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Height perception of children with GH Deficiency: Influencing factors and links to psychosocial functioning

C. Drosatou, E-A. Vlachopapadopoulou, M. Bullinger, J. Quitmann, N. da Silva, S. Michalacos, K. Tsoumakas (2018, September)

Poster session presented at the 57th Annual Meeting of the European Society of Paediatric Endocrinology (ESPE), Athens, Greece.

Factors influencing health related quality of lfe in children/adolescents with growth hormone deficiency

C. Drosatou, E-A. Vlachopapadopoulou, M. Bullinger, J. Quitmann, N. da Silva, S. Michalacos, K. Tsoumakas (2018, September)

Poster session presented at the 57th Annual Meeting of the European Society of Paediatric Endocrinology (ESPE), Athens, Greece.

Cross-cultural comparison of pediatric asthma-related quality of life between Portugal and other European countries: Measurement invariance and differential item functioning of the DISABKIDS Asthma Module

N. da Silva, C. Carona, MC. Canavarro, M. Bullinger (2018, September). 

Poster session presented at the European Pediatric Psychology Conference 2018, Ghent, Belgium.

DOI:
10.13140/RG.2.2.34135.32168

Umsetzung der WHO Psoriasis - Resolution in die Öffentlichkeit: ein bundesweites Programm gegen Stigmatisierung bei chronisch sichtbaren Hauterkrankungen

 M. Augustin, U. Mrowietz, C. Luck-Sikorski, R. von Kiedrowski, S. Schlette, M. Radtke, SM. John, A. Zink, N. Suthakaran, R. Sommer (2018, October). 

17. Deutscher Kongress für Versorgungsforschung 2018: P230

Translating the WHO psoriasis resolution into the public: the German federal program against stigmatization 2018-2020

M. Augustin, U. Mrowietz, C. Luck-Sikorski, R. von Kiedrowski, S. Schlette, M. Radtke, SM. John, A. Zink, N. Suthakaran, R. Sommer (2018, October). 

Annual Conference of the International Society for Quality of Life Research 2018: ID2044

Do children/adolescents with chronic health conditions have worse HrQoL than their healthy peers? A meta-analysis of studies using the KIDSCREEN questionnaires

N. da Silva, M. Pereira, C. Otto, U. Ravens-Sieberer, MC. Canavarro, M. Bullinger (2018, October). 

Oral communication presented at the ISOQOL 25th Annual Conference, Dublin, Ireland.

DOI:
10.13140/RG.2.2.14177.15208

Applications of the Kidcope questionnaires in pediatric settings: A developmental perspective in the evaluation of coping in children and adolescents

C. Carone, N. da Silva, H. Moreira, L. Barros, MC. Canavarro (2018, September)

Oral communication presented at the 10º congresso AIDAP/AIDEP: Diagnóstico e avaliação psicológica, Coimbra, Portugal

Quality of life in children and adolescents with short stature: Semantic validation and pilot study of the Portuguese versions of the QoLISSY questionnaires

N. da Silva, JP. Almeida, M. Bullinger, MF. Magalhães, MC. Canavarro (2018, September)

Oral communication presented at the 10º congresso AIDAP/AIDEP: Diagnóstico e avaliação psicológica, Coimbra, Portugal.

Versorgungsforschung in der Dermatologie 2018 – Kraft des Faktischen. Was Versorgungsforschung ist und wem sie dient

M. Augustin, I. Schäfer,  R. Sommer

Institut für Versorgungsforschung in der Dermatologie und bei Pflegeberufen (IVDP), Universitätsklinikum Hamburg-Eppendorf (UKE), Hamburg, Deutschland

Versorgungsforschung hat sich in Deutschland wie auch in den meisten anderen Ländern als eine weitere wich- tige Säule der Gesundheitsforschung gleich neben der experimentellen For- schung und der klinischen Forschung entwickelt. Mehr als alle anderen gesund- heitlichen Forschungsdisziplinen stellt sie den Bezug zur Routineversorgung auf der einen Seite und den regulato- rischen Bereichen der Versorgung wie Gesundheits- und Versorgungspolitik, Systemfinanzierung, Public Health und dem Sozialsystem auf der anderen Seite her.

PMID:
30215114
DOI:
10.1007/s00105-018-4274-7

Differences between patient- and proxy-reported HRQoL using the Wound-QoL

R. Sommer1, C. Hampel-Kalthoff2, B. Kalthoff2, C. Neht1, E. Scherfer2, M. Winkler2, C. Blome1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2ORGAMed Dortmund GmbH, Dortmund, Germany

Wound Repair Regen. 2018 May;26(3):293-296

 

The purpose of this study was to examine the patient- and proxy-report agreement on the Wound-quality of life (QoL) questionnaire to assess health-related QoL in patients with chronic wounds. Patients and their proxies (in this case, relatives) were recruited via different nursing services in Germany and asked to complete the Wound-QoL.

PMID:
30118159
DOI:
10.1111/wrr.12662
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