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Patients' and physicians' perspectives of shared decision making for psoriasis systemic treatment: associations with sources of information and health literacy

N. da Silva, M. Augustin, S. Pohl, J. Traxler, R. Sommer (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

A Systematic Review and Meta-analysis of Factors Associated with Stigma of Dermatologic Disease Psychodermatology and quality of life

CFZ. Stuhlmann, S. Lysakova, C. Jordan, T. Revenson, R. Sommer, L. Wilhelm (2022, September)

ePoster presented at 31st European Academy of Dermatology and Venereology (EADV) Congress

Is Social Stigma Responsible for the Poor Psychological Adjustment of People with Visible Skin Disease? A Meta-Analysis

CFZ. Stuhlmann, S. Lysakova, C. Jordan, TA. Revenson (2022, April)

Poster accepted for the Society of Behavioral Medicine, Baltimore, MD.

Cumulative Life Course Impairment: systematisches Review zur Bestimmung von Indikatoren

C. von Stülpnagel, M. Augustin, L. Düpmann, N. da Silva, R. Sommer (2021, April). 

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Xerosis cutis und Stigmatisierung: Patientensicht bei Hauterkrankungen und Erkenntnisse über die Auswirkungen einer Hautpflege

C. von Stülpnagel, N. da Silva, L. Schmidt, G. Nippel, M. Augustin, Sommer (2021, April).

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Patients’ and physicians’ perspectives on body surface area affected by psoriasis: Links between disease burden, patient-physician (dis)agreement and patient benefits

N. da Silva, M. Augustin, C. Hilbring, C. von Stülpnagel, R. Sommer (2021, April). 
 

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Validation of the Spanish Wound-QoL Questionnaire.

E. Conde Montero1, 2, 3, R. Sommer3,M. Augustin3, C. Blome3, R. Cabeza Martínez4, C. Horcajada Reales5, M. Alsina Gibert6, R. Ramón Sapena7, A. Peral Vázquez1, 2, J. Montoro López1, 2, S. Guisado Mun ̃oz1, 2, L. Pérez Jerónimo1, 2, P. de la Cueva Dobao1, 2, N. Kressel3, N. Mohr3

1Servicio de Dermatología, Hospital Universitario Infanta Leonor, Madrid, Spain

2Centro de Especialidades Vicente Soldevilla, Hospital Virgen de la Torre, Madrid, Spain

3German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

4Servicio de Dermatología, Hospital Universitario Puerta de Hierro-Majadahonda (HUPHM), Madrid, Spain

5Servicio de Dermatología, Hospital Universitario de Fuenlabrada, Madrid, Spain

6Servicio de Dermatología, Hospital Clinic de Barcelona, Barcelona, Spain

7Servicio de Dermatología, Hospital General Universitario de Alicante, Alicante, Spain

Actas Dermosifiliogr (Engl Ed). 2021 Jan;112(1):44-51

 

Background and aims: The Wound-QoL is a validated and feasible questionnaire for measuring disease-specific health-related quality of life in chronic wounds, originally developed for use in German.

The objective of this study was to translate the Wound-QoL for use in clinical care and in clinical trials in Spain and to validate this version.

PMID:
Epub 2020 Nov 1. 33137321
DOI:
10.1016/j.ad.2020.09.007

Effects of secukinumab on disease burden, patient needs and benefits, and treatment satisfaction in patients with plaque psoriasis across european regions: Patient’s perspective data from the PROSE study

N. da Silva, R. Sommer, C-E. Ortmann, P. Jagiello, T. Bachhuber, M. Augustin (2021, April).

ePoster presented at 51. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG-Tagung), Berlin, Germany. [Virtual].

Secukinumab effects on patient reported outcomes in plaque psoriasis across Europe: Data from the PROSE study

N. da Silva, R. Sommer, C-E. Ortmann, P. Jagiello, T. Bachhuber, M. Augustin (2021, July). 

 

 

ePoster presented at 6th World Psoriasis & Psoriatic Arthritis Conference [Virtual].

Stigma in visible skin diseases - a literature review and development of a conceptual model

N. Germain1, M. Augustin2, C. Francois1, K. Legau3, N. Bogoeva4, M. Desroches1, M. Toumi5, R. Sommer2

1HEOR, Creativ-Ceutical, Paris, France

2Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

3LEO Pharma, Kopenhagen, Denmark

4HEOR, Creativ-Ceutical, Sofia, Bulgaria

5Public Health Department, Aix-Marseille University, Marseilles, France

J Eur Acad Dermatol Venereol. 2021 Jul;35(7):1493-1504

 

The burden of visible skin diseases (VSDs) includes not only physical symptoms but also psychosocial consequences such as depression, anxiety, impaired quality of life and low self-esteem. Stigmatization was shown to play a major role in people with skin diseases. The aim of the study was to review the evidence for the components, drivers and impacts of (self-)stigma, and to organize the data into a series of conceptual models.

PMID:
Epub 2021 Feb 12. 33428316
DOI:
10.1111/jdv.17110
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