Publikationen

Nach Typ filtern

Nach Jahr filtern

Alle Jahre anzeigen

Topology of psoriasis in routine care: results from high-resolution analysis of 2009 patients

M Augustin1, R Sommer1, N Kirsten1, A Danckworth1, M A Radtke1, K Reich2, D Thaci3, W H Boehncke4, A Langenbruch1, U Mrowietz5

1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2Dermatologikum Berlin and SCIderm Research Institute, Hamburg, Germany

3Comprehensive Center for Inflammation Medicine, University Hospital Schleswig-Holstein, Campus Lübeck, Lübeck, Germany

4Department of Dermatology and Venereology, Geneva University Hospitals, Geneva, Switzerland

5Department of Dermatology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel, Germany

Br J Dermatol. 2019 Aug;181(2):358-365

 

Different phenotypes have been described in psoriasis. Few details are known about the topology of patients in routine care.

Objectives: To characterize the frequency and distribution of body sites affected by psoriasis in Germany.

Strategies to reduce stigma related to visible chronic skin diseases: a systematic review

J Topp1, V Andrees1, N A Weinberger2, I Schäfer1, R Sommer1, U Mrowietz3, C Luck-Sikorski2, M Augustin1

1German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany

2SRH University of Applied Health Science, Gera, Germany

3Psoriasis-Center, Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany

J Eur Acad Dermatol Venereol. 2019 Nov;33(11):2029-2038

 

Many patients with a visible chronic skin disease experience discrimination and stigmatization. This results in psychosocial impairments in addition to the burden of disease and emphasizes the urgency to implement effective stigma-reduction strategies. To synthesize what is known globally about effective interventions to reduce stigma associated with visible chronic skin diseases, a systematic review was conducted. Four electronic databases were searched until May 2018. Studies evaluating interventions to reduce stigmatization in patients with visible chronic skin diseases and applying at least one stigma-related outcome measure were included. Data were extracted on study design, country, study population, outcome measures and main findings. Results were subsequently synthesized in a narrative review. Critical Appraisal Skills Programme tools were used to assess study quality. Nineteen studies were included in the review. Study design was very heterogeneous and study quality rather poor. Thirteen studies addresses patients with leprosy in low- and middle-income countries, and one study each targeted patients with onychomycosis, leg ulcer, facial disfigurement, atopic dermatitis, vitiligo and alopecia. Evaluated interventions were mainly multi-faceted incorporating more than one type of intervention. While 10 studies focused on the reduction in self-stigma and 4 on the reduction in public stigma, another 5 studies aimed at reducing both. The present review revealed a lack of high-quality studies on effective approaches to reduce stigmatization of patients with visible chronic skin diseases. Development and evaluation of intervention formats to adequately address stigma is essential to promote patients' health and well-being.

Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study

S. Witt1, M. Dellenmark-Blom2, S.Flieder3, J. Dingemann3, K. Abrahamsson2,4, L. Jönsson2, V. Gatzinsky2, J.E. Chaplin4, B. Ure3, C. Dingemann3, M. Bullinger1, R. Sommer1,5, J.H. Quitmann1

1Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

2Department of Pediatric Surgery, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden

3Department of Pediatric Surgery, Hannover Medical School, Auf der Bult Children's Hospital, Hannover, Germany.

4Institute of Clinical Sciences, Department of Pediatrics, Gothenburg University, The Queen Silvia Children's Hospital, Gothenburg, Sweden

5Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany

Child Care Health Dev. 2019 Jan;45(1):79-88

 

Esophageal atresia (EA) is a rare malformation of the esophagus, which needs surgical treatment. Survival rates have reached 95%, but esophageal and respiratory morbidity during childhood is frequent. Child and parent perspectives and cultural and age-specific approaches are fundamental in understanding children's health-related quality of life (HRQoL) and when developing a pediatric HRQoL questionnaire. We aimed to increase the conceptual and cross-cultural understanding of condition-specific HRQoL experiences among EA children from Sweden and Germany and investigate content validity for an EA-specific HRQoL questionnaire.

Sex-related impairments and patient needs in ano-genital psoriasis: Difficult to communicate topics and their impact on patient-centred care

N. da silva, M. Augustin, A. Langenbruch, U. Mrowietz, K. Reich, D. Thaçi, W-H. Boehncke, N. Kirsten, A. Danckworth, R. Sommer (2019, October). 

Press briefing at the 28th European Academy of Dermatology and Venereology (EADV) Congress, Madrid, Spain.

Identifying specific patient needs and treatment goals in chronic spontaneous urticaria for a patient-centered clinical decision-making process.

R. Sommer, M. Augustin, A. Langenbruch, M. Maurer, P. Staubach, N. da Silva (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): FC07.08

Significance and extent of stigmatization against persons with visible skin conditions in the public

R. Sommer, M. Augustin (2019, October). 

28th European Academy of Dermatology and Venereology Congress 2019 (Oral presentation): OP05.05

Wahrnehmung und Prädiktoren von Vorurteilen bei Menschen mit Psoriasis

R. Sommer, J. Topp, U. Mrowietz, I. Schäfer, M. Radtke, R. von Kiedrowski, M. Augustin (2019, May). 

50. Jahrestagung der Deutschen Dermatologischen Gesellschaft 2019: P295

Disease burden and patient needs related to sensitive body areas in patients with psoriasis: Results from routine care

N. da Silva, M. Augustin, A. Langenbruch, A. Danckworth, R. Sommer (2019, May). 

Poster session presented at the 50. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG), Berlin, Germany. 

Characterising treatment-related patient needs in atopic eczema: Insights for personalised goal orientation

M. Augustin, A. Langenbruch, R. Reinert, C. Blome, M. Gutknecht, T. Werfel, S. Ständer, JT. Maul, S. Steinke, N. Kirsten, N. da Silva, R. Sommer (2019, May). 

Poster session presented at the 50. Jahrestagung der Deutschen Dermatologischen Gesellschaft (DDG), Berlin, Germany

Characterizing treatment-related patient needs in atopic dermatitis: Insights for personalized goal orientation

M. Augustin, A. Langenbruch, R. Reinert, C. Blome, M. Gutknecht, T. Werfel, S. Ständer, S. Steinke, N. Kirsten, R. Sommer (2019, June). 

24th World Congress of Dermatology 2019: ID5339